Ezra - Face of Cannabis T-Shirt

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About Ezra

The first video of a seizure I recorded was at 4 days old and hospitalizations started at 6 days old. All he knows is being “high” his entire life — starting with phenobarbital, so much at 3 months old (10 ml of pheno) that he slept 21 hours a day. Ezra was developing normally until 3 months until this high dose of pheno and topamax, then the seizures were so severe (generalized tonic clonics with apnea….he’d stop breathing…and was put in a medicated coma for a week because he’d stopped breathing 3 times before arriving at the hospital, and was bagged with each violent seizure). At that point, the next med he was put on triggered Infantile Spasms and he completely regressed to that of a newborn and has been that way ever since.

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